Kansas Melissa Jaquez, 38, is under the scrutiny of the policy: because of the rare disease that struck the skin of her children, law enforcement officers constantly suspect her of domestic violence, The Daily Mail reported.
According to the source, Melissa’s sons were diagnosed with recessive dystrophic epidermolysis bullosa. The disease is characterized by the formation of blisters and erosions on the skin and mucous membranes, as well as dystrophy. To date, only Marcos Jordan, who is 18 years old, has survived. His brother Carlos Xavier died at the age of 14 from heart failure.
Epidermolysis bullosa is a genetic disease.
“Their skin was as thin as butterfly wings, so this illness is also known as "baby butterfly". Also, they had no skin on their hands, feet and calves. Neither of them [were] born with the collagen that connects and bonds their skin together. This means they haven't ever walked. My sons had to have feeding tubes by six months old because even swallowing their own saliva caused open sores in the oesophagus,” Jaquez said.
Marcos' wounds are extremely painful, and even a change of medical bandages causes him great pain. In order to improve the quality of life and not suffer from pain, the young man is forced to take daily opioid analgesics and other potent drugs. His mother notes that he, despite all the trials, is trying to maintain a positive attitude towards life.
Marcos is a believer, and according to Melissa, it is faith in God that gives him the strength to live on.