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08:43, April 26 Enzymes that convert different blood groups into first group are discovered
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19:41, April 25 Children’s Hospital Los Angeles and International Center of Professional Development Allergy/Immunology Conference
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17:31, April 25 JAMA: patient grew long, curly eyelashes because of chemotherapy
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11:08, April 25 Mpox epidemic declared in Republic of the Congo
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08:31, April 25 OU: quitting smoking 4 times more likely to cure laryngeal cancer
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01:20, April 25 Paralyzed man in China writes hieroglyphs using neural implants placed in his brain
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15:11, April 24 Zombie deer disease possibly linked to hunters’ deaths
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12:27, April 23 Appetite: Scientists found out the secret to the appeal of large portions of fast food
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10:33, April 23 Scientists test new approach to fighting viruses
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08:38, April 23 Ketamine may help with postpartum depression
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22:12, April 22 Unhealthy amount of sugar found in baby food products of a well-known brand
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19:41, April 22 Air pollution puts health of more than 1.6 billion workers globally at risk
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17:25, April 22 Scientists found baked goods and lack of sleep to be more dangerous than alcohol
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16:02, April 22 342 cases of measles recorded in Armenia so far in 2024
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15:29, April 22 BrainStimulation: electrical brain stimulation alleviates anxiety and depression in the elderly
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Woman reveals police accused her of burning her sons who have rare disease
Kansas Melissa Jaquez, 38, is under the scrutiny of the policy: because of the rare disease that struck the skin of her children, law enforcement officers constantly suspect her of domestic violence, The Daily Mail reported.
According to the source, Melissa’s sons were diagnosed with recessive dystrophic epidermolysis bullosa. The disease is characterized by the formation of blisters and erosions on the skin and mucous membranes, as well as dystrophy. To date, only Marcos Jordan, who is 18 years old, has survived. His brother Carlos Xavier died at the age of 14 from heart failure.
Epidermolysis bullosa is a genetic disease.
“Their skin was as thin as butterfly wings, so this illness is also known as "baby butterfly". Also, they had no skin on their hands, feet and calves. Neither of them [were] born with the collagen that connects and bonds their skin together. This means they haven't ever walked. My sons had to have feeding tubes by six months old because even swallowing their own saliva caused open sores in the oesophagus,” Jaquez said.
Marcos' wounds are extremely painful, and even a change of medical bandages causes him great pain. In order to improve the quality of life and not suffer from pain, the young man is forced to take daily opioid analgesics and other potent drugs. His mother notes that he, despite all the trials, is trying to maintain a positive attitude towards life.
Marcos is a believer, and according to Melissa, it is faith in God that gives him the strength to live on.
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