Heartwarming footage shows a toddler 'who was born with BACKWARDS LEGS' due to a one-in-a-million condition walking, running and playing after life-changing surgery

April 19, 2019 09:42

Heartwarming footage shows a toddler who was born with backwards legs walking, running and playing following life-changing surgery.

Victoria Komada was born with the one-in-a-million defect tibial hemimelia, which caused her to have a missing shinbone in her right leg and a shortened one in her left limb.

Eight specialists warned the three-year-old's parents Marzena Drusewicz, 32, and Dariusz Komada, 41, her only option was a double amputation.

Refusing to give up on their daughter, the pair found a limb reconstruction specialist in Florida and fundraised £180,000 to pay for her to have two surgeries.

Medics were only able to save one of Victoria's legs, however, a prosthetic finally enabled her to walk.

Following nine months of treatment, the family finally flew home to Norwich on Monday, with Victoria being due to start school in September.

Dr Dror Paley - who performed Victoria's surgery at the Paley Institute in West Palm Beach, Florida - said: 'We achieved all we said we would achieve on her.

'The reconstructed leg is very functional. She can walk and run and do sports now. She has a superb result.'

Although thrilled her daughter can play like any other child, Ms Drusewicz admits her treatment was grueling.

'She was in a lot of pain all day and all night,' she said. 'We had all had enough. It was really horrible.

'Of course I was so scared and didn't know what would was going to happen. She would cry and scream so much after the operation.

'Every week she got better and better, and now she is not in any pain at all and can walk normally and we can all start our life again now we are home.

'We were so happy when she took her first steps we started crying. We were on the way to the car and she said "mummy, can I show you something?"'

The couple, who are originally from Poland, flew to Florida in July last year to meet Dr Paley.

He told the family Victoria's left leg could be fixed, however, her right needed amputating.

'The reason is on the right side, where the tibia is completely missing, the quadriceps muscles mostly missing - the functional result's not going to be great,' Dr Paley said.

The youngster went under the knife for the first time in a nine-hour operation on July 24, which involved amputating her right leg above the knee.

Pins were then put into her left leg before a fixator - a stabilising frame that holds broken bones in place - was attached. This gradually stretched her limb into shape.

Over the following months screws were twisted into Victoria's legs every day to move the bones into the right position.

The family stayed at the hospitality centre Quantum House throughout their nine-month stay.

Victoria then went under the knife again on November 13, which involved medics fusing the bones in her left leg to strengthen the limb.

Just two days later, she took her first steps with the aid of a prosthetic.

The couple hope their daughter will have a normal childhood like any other youngster.

'She's a normal kid, she's like clever, she's happy always,' Mrs Komada said.

'I just want her to have a normal life and I know she's going to have a normal life because she's a strong girl.

Mr and Mrs Komada moved to the UK 14 years ago, and were expecting a baby shortly after.

The pregnancy went smoothly, with no signs anything was wrong until Victoria was born.

Speaking of seeing her daughter for the first time, Mrs Komada said: 'The nurse, she came to me and she said: 'I'm going to give you your daughter in a minute because she's got problems with her legs.'

'I said, 'what problem with her legs?' and she said 'nothing don't worry'.

An orthopaedic surgeon diagnosed Victoria and recommended she have both her legs amputated. But the new parents refused to let her go under the knife.

'For me she needs her own legs, not amputate and prosthetic legs,' Mr Komada said. 'And I said "no I will not agree to amputate legs, no, no, no".

Online research eventually led the couple to Dr Paley, who specialises in limb lengthening and reconstruction.

After carrying out a series of scans on Victoria's legs, Dr Paley was confident he could help the youngster, but it would take a year before the treatment was over.

He initially charged them £300,000, before agreeing to carry it out for £190,000.